Thursday, May 23, 2013

Update - Things Aren't So Good (Fundraising)

I'm a single, disabled mom who is falling through the cracks. I don't do drugs, smoke or drink, but we'll get an eviction notice served on us Friday, and Saturday they'll probably come to repossess my car. I've been disabled 1.5 years and this is where I'm at financially - almost homeless and definitely bankrupt. My disability redetermination was denied and has to go to a judge for processing. It could take a year to see a judge. It's already been over a year since I filed. I'm working as hard as I'm able, yet it's not enough to get out from under the overdraft fees and late payments that keep snowballing.

I finished the rest over here on my new blog:

Jenn's Place - Fat Finds Fit


Thursday, January 3, 2013

Life With Polymyositis

Before Polymyositis - Sept 2012


Missed you too
Going back to Dad's house - June 2012





Technology keeps us connected (thx Xbox Kinect)
I made it to 39 - Sept 2012
Restaurant celebration together
Going to sports classes

After Christmas 2012





2013 Here we come!

Daily snack after breakfast
Winter in WI hurts

Friday, November 30, 2012

Bye Bye NoBloPoMo & #201

So I didn't make it every day this month. I missed a 15 day chunk before and during Thanksgiving week. I got sick and then overwhelmed with travel. But that's okay. I haven't posted this much in a long time and I enjoyed pushing myself.

I think this is indicative of my life now too. I may not be able to do everything I want to do, when I want to do it, but I can push myself to try and accept that I won't always get it all done in my time frame. I wrote exactly 5 words in NaNoWriMo. The start of an outline. There was no way this was a good time to add that to my plate. Maybe next year, or the year after. It's not a good idea to do this when you have final exams looming or week-long travel plans. Whoops.

What I did get out of NoBloPoMo is the urge to blog again. I only get less than 10 readers a day but that's okay. I think I found my way back to blogging my thoughts out again. Since I committed to blogging all of November, I started a few different posts that I'll finish later, and I found drafts from years previous that I want to update and post.

So even though I failed at blogging every day this month, I'm okay with 'losing' this time. It was an important lesson for me to at least try.

Oh, and this was post #201 for me - here anyway. I have many others tucked away in my archives from way back.

Thursday, November 29, 2012

Dating With a Disability

For ages, even before I got sick, I said I wanted to start dating again. Sometimes I put my feelers out there just to check on what I might reel in. It's never pretty. I have an online dating profile up - for now. I deleted many replies there, texted a few back and forth, and never met any of them. Well, I planned to meet one but got blown off THREE times and had to put him in the deleted pile. I've been divorced for...almost 4.5 years now. I was still wrapped up in my own wishful world of the past. Then I got sick. Nothing was happening in my dating world after I got sick & I had to focus on getting better.

But they say that when you're not expecting it, it'll come. I think I may be open to it, but not actively looking for it. There is one potential. I just need to decide what I want to do with that potential, and if I'm ready. The major issue I'm having, outside of the lovely medication weight gain (seriously 40 lbs since May, wtf), is how or when to tell someone I'm disabled. I'm pretty sure seeing my handicap plates pull up on a date is going to give something away. If it's winter and snowing or icy, I have a cane to announce that I have some kind of issues.

So I obviously have to say something before a first date where it'll be obvious. I'd rather not spring it on someone as a surprise - like the guy who says he's 40 and shows up as 50. But I don't want to get into it on my dating profile and attract any weirdos either. So at what point between the first few emails or phone calls and a first date do I address my disability? I have mobility & strength issues. Not super obvious ones, but noticeable in certain situations. Something like a restaurant booth or bar stools are issues for me. If I sit too long I have issues standing up because my muscles stiffen.

Granted, if the person is someone I already know, then this isn't exactly an issue since they see me in person. But even then, they may not know what my issue is or how my polymyositis affects my daily activities. They may wonder about sex and not know how to ask if I'm willing and able! For the record, yes to both. I'm disabled, not dead for goodness sake. There might be mishaps or minor modifications but it's supposed to be fun, not some over-thought, be-careful-or-I-might-break-her situation.

So how to address awkward issues of my disability without going into my long, insane illness? I don't know. I'm going to have to think about it if I don't want to be bombarded by questions all about my journey on a date. I'm also hoping the issue of sex and my disability will weed out those too uncomfortable to talk maturely about sex. Something I despise. It's just sex. Really. If you can't talk about it like an adult, and not just "What's your fave position", we're so not having it.

I just wonder if I spring the disabled thing on them too soon will it freak someone out, or if I wait until we meet do I seem sneaky and untrustworthy? Thoughts?

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